A Crazy Few Weeks

It’s been a crazy few weeks after I discovered last Wednesday I was entitled to PIP when I woke up and checked my bank account. A letter followed that afternoon. I didn’t quite know how to feel to be honest so I’ve been a bit quiet on the blog. I was quite relieved to have the back payment and be able to sort a few thing’s we needed but at the same time it made me feel quite low. My Anxiety & Depression have spiralled our of control because of Chronic Pain at the moment that I need this just to help me do simple things and make life a little less stressful!

I’ve found it hard to write or join in properly on twitter again which is quite frustrating but I’m feeling a little bit better about everything now and trying to focus on the positives.

It’s been a struggle to get out and about for month’s thanks to anxiety and pain making my life hell. I’ve been able to get taxi’s over the last week or so, something I usually avoid because of the cost. It’s been quite nice to go out and not hurt instantly from walking there or panicking about missing a bus or train. I have a lot of different appointments coming up with CBT, Psychology etc. It’s difficult having to go alone as the Mr has to look after the girls. Now I know it won’t be half as stressful going alone as I can take a taxi and not be late or stood waiting in the cold for up to 30 minutes!

I’ve been able to sort storage for the girls room so they have no excuse for it to be too messy. Hopefully saving my back from hours of tidying. Something I stress about regularly. I feel a bit guilty as I should have a quick tidy in there every day but I struggle to keep up with it all, hopefully now the girls will know where to put everything and keep it cleaner.

I decided to treat myself a little to try and make me feel a bit better about myself. I had my hair cut last week and then the Mr dyed it for me with my usual Schwarzkopf XXL Live Mystic Purple dye! He even did my brothers hair too which made Alex happy. It’s definitely made me feel a little less-self conscious being purple again.

a crazy few weeks

I bought a dinner table so we can eat properly at a table as a family, great for Family dinner’s! My brother Alex has found our family dinner’s give him a sense of normality and family life he missed out on growing up and he loves that. It’s nice for me too as I rarely see anyone these day’s, now it will be much easier so we can do it more often.

Although our day out this half term didn’t quite go as planned as 360 Play in Basildon were full and had to turn us away, the girls had fun in the arcades at Hollywood Bowl. I was a bit gutted but also quite grateful as the noise in the arcades was bad enough! I felt pretty anxious but with my brother there I managed to stick it out long enough for the girls to have fun.

Martyn & the boys came over this week too for a Greek day, it turned into a not so Greek day with only shields and swords being completed.. me playing with bubble wrap and paint may not have helped haha! It was a rather noisy busy day all round but it was nice to have a catch up and the girls obviously had lots of fun.

Today Eva is off at a Disney Princesses and Princes workshop at the Thameside Theatre run by Creative blast. I surprised her and kept the day a secret right up until the last minute when I pulled her Elsa dress out and explained what she would be doing. She was a little confused at first bless her as she thought I had something important to do haha! The lady at the desk explained what would happen across the day and Eva got excited, even more so when she had her dress on! At the end of the day they are putting on a show which we will go and watch 20 minutes before the end of the day at 4pm. The day only cost £22.50 and it was a fairly small group of kids so I’m sure Eva will have lots of fun getting involved with the others!

 

Lung Infection & Lupus – Worrying About My Baby Brother

I’ve been worrying about my baby brother over the weekend. Most of you will know from some of my posts and tweets Alex is a big part of my life so to get a panicky call from him on Saturday and hearing him seriously struggling to breath left me worrying, A LOT. As well as struggling to breath he’s had these strange ring rashes appear which look very much like Lupus.

Alex had tried and struggled to go to his nearest shop and rung me worried, he didn’t want to walk to the hospital ‘in case it was a waste of time’. He suggested waiting until the morning..  So I put my Mummy voice on and insisted at the very least he call 111 for some advice.

Panicking

As soon as I put my phone down I began to panic, Alex doesn’t have the greatest immune system and has weak lungs from being born prematurely, he also suffers from Asthma. Temperatures were below 0 and I was worried he would get worse but luckily he did what he was told and called 111. An ambulance was sent out to him and the paramedics decided he needed to go to hospital. His heart rate and irregular breathing was concerning them so they insisted he was wheeled to the ambulance instead of walking which he wasn’t too impressed with.

He text me to let me know he was waiting for the ambulance then understandably I didn’t hear from him for over an hour. I spent the entire time unable to concentrate on anything, constantly checking my phone for an update. Eventually Alex let me know he had bloods taken and had ‘things put all over his chest’ (ECG) and he was scared. I tried to distract him whilst he waited, chatting about a documentary I was watching on the London Graveyard’s by London Liverpool Street Station.

After some rambling back and forth he eventually got his results. It turned out Alex has a lung infection and suspected Lupus. He called me as he walked home, struggling to breathe. Hearing him so vulnerable, crying from the pain, being so scared alone was horrible, I just wanted to be there and give him a hug. He was given antibiotics for the lung infection and his NHS number (At last!!!!) so he can finally register with a GP and get a referral to a dermatologist to confirm the suspected lupus.

The two major symptoms are joint and muscle pain and an extreme tiredness that won’t go away no matter how much you rest.

Rashes, depression, anaemia, feverishness, headaches, possible hair loss and mouth ulcers may all be part of the pattern of lupus.

Noticeably, whilst the two major symptoms are invariably present, people with lupus can differ greatly in their symptoms and how the illness can affect them – life-threatening for a few, very mild for some.

We are all extremely worried about his health, he has had all the symptoms that point to lupus for a while now. This worried me just as much as the lung infection. He is my baby brother and I hate that I couldn’t be there with him. Not having a car is becoming more and more stressful, things like this happen and I’m left helplessly worrying instead of being there to look after him. I’ve always tried to look out for my baby brother, I remember holding his tiny little hand through the incubator for the first time. He was so tiny and fragile and spent a long time in NICU so when he finally came home I couldn’t leave him alone.

I fed him & changed him as a baby, I taught him his first words, how to read and write. He learnt his first colours from a song I made up with a row of coloured teddies over his bouncer. Red teddy, yellow teddy, green teddy, blue! He may be my baby brother but I guess in a way he’s always been my baby too which is why I’m so protective of him. To me he’s just like the girls, he’s a huge part of my world and I always feel the need to care for him so times like this are extremely tough.

Brother & Sister forever

Alex and I had an unusual childhood, he was in care from 7/8 years old but this has never stopped us having a strong relationship. We have only lost contact once for a few months when I left home and went into a women’s refuge, I didn’t have any contact details for him but eventually we sorted it and contact resumed. When I had Eva he had been sectioned and was in hospital after several suicide attempts. I knew I had to jump in some how and bring some normality back to his life so I arranged home visits, had visits from Social services etc. to ensure our flat was safe for him.

Since then we have kept in regular contact and gone through a lot together, I know he almost see’s me as a mum to him too and with him not talking to ‘her’ right now means I am pretty much all he has, knowing that and not being there was so difficult. We were brought up to avoid Dr’s and Hospital’s, terrified that anything and everything would end in needles.. no wonder I had a needle phobia! Knowing he was sat in the same A&E room where he sat as a child being told off for having a broken leg worried me, he’s also overdosed several times and ended up there too. He suffers from PTSD and I was terrified this would set him off but distracting him did seem to help.

Going forward

I’m hoping the antibiotics help and his lung infection goes away. I’ll be focusing on getting over to him as much as I possibly can over the next few weeks to help get him registered at a GP. We also need to get his referral for a dermatologist to find out if he does have Lupus and what we can do to keep him as healthy as possible. Lupus is extremely complicated and Alex is understandably terrified as he has no clue what’s going on. He’s had so many of the symptoms that it really is worrying but I intend to look after my baby brother as much as possible!

Have you ever been in a similar situation? Do you know anything about Lupus that may help? Please do leave a comment if you have any experience with Lupus.

My Medication Review

My medication review was this morning. Knowing I have pain clinic next week I decided I really needed to focus more in my mental health. My anxiety has been through the roof lately and I’ve struggled to brain.. a lot!

I was completely honest about how I’ve been feeling and I was basically given 2 options.

1. Be referred to a psychiatrist so I can be put in stronger medication as I’m already on such a low dose. (Something I’d prefer to avoid if possible)

2. Refer myself to the therapy centre above the surgery.

I decided to go upstairs and refer myself for therapy. I recieved a call later in the afternoon going over how I feel, my symptoms and my mental health history. Once I had finished the questionnaire the lady suggested referring me for CBT (Cognitive Behavioural Therapy).

I panicked but decided I need to do something because I hate struggling so much. I hate feeling like I can’t do anything right and I’m useless. I hate not being able to go out without panicking. I hate being invited somewhere and feeling like its just out of politeness. I want to enjoy things & believe in myself a little bit more. I know it may not help fully but if it can calm me down even slightly I might not be such an anti-social stresshead!

I spoke to my brother about it this evening and he told me he went through a CBT course and mentioned it made him feel patronised at first but after a few sessions it did help change his way of thinking. I’m hoping it can help me too and I’m also glad for the heads up as I think I might have struggled to continue if the first few sessions don’t seem to help.

I now have to wait for a call when an appointment is free to start the CBT. I’ve no idea how long that will be but I’m hoping it’s not too long.

As I said I have pain clinic on Tuesday too. Whilst the Gabapentin has helped massively I am still struggling. I’m still feeling those electric bolts through my legs, pain in my hips & back. Now it’s getting much colder my ribs hurt too so I need to bring all of this up and see if they can suggest anything that may help.

I’m quite exhausted after today but I’m glad in between all of it I still managed to join the Mr & Izzy at the pub. Our favourite pub is always quiet & we know the regulars. Sometimes I do mire than smile politely and say hi too. Today wasn’t one of those days but it was nice to be acknowledged and left alone to enjoy being outside of these walls.

I now want to hide away for a few days though. It’s been a very hectic, peopley, emotional day with too many phone calls & talking to ‘important people’. I’ve gone over a lot of my past in a 20 minute phone call which has left my head hurting a bit aswell as admitting my crazy is getting too crazy.

I decided to write and publish this before I decide it isn’t worth it as I usually do but now I’m off to curl up and feel sorry for myself because I hurt all over and feel so cold!

Have you tried CBT? Did it help at all? I’m honestly quite nervous about it all and would love some feedback!

I Just Can’t Brain Some Days

Do you ever have those ‘I can’t brain today’ days? I do quite regularly and it can be very stressful.

My mind wanders.. I’ve no idea where it wander’s to at times but I just can’t focus and feel useless. I find myself just staring blankly at things. Sometimes the smallest of things causes it, other times I just wake up like it.

I struggle to word, I struggle to write, I struggle to adult, I just can’t brain at all. I’m aware of what’s going on around me but struggle to interact. I’ll be scrolling through twitter but have absolutely no idea what to say or if it’s ‘ok’ to comment on something.

It’s frustrating and I get annoyed with myself but I just have to let it pass and try to ride it out. My chest hurts and I have awful dizzy spells. I struggle to interact with people and probably come across a bit moody at times because of it. Some days I just can’t brain and figure out what to say or do. I stress about having to do anything.

The last month or so has been full of ups and downs for me, as I’m sure it has for many others so I’ve been struggling to brain a little more than normal. Forgetting to go to my medication review and running out of tablets for a day or 2 knocked me a bit but luckily I braved a phone call to my GP surgery. I was quite distressed on the phone to my GP surgery where I had missed an appointment but the receptionist could obviously tell. An emergency prescription was arranged to be collected from the chemist around 11am which the Mr got for me. I was also booked in for my medication review which is tomorrow!

Even though I managed the call and everything turned out ok, my chest still hurt when I put the phone down. I still had to try and breathe slowly to try and keep myself calm and stop everything going fuzzy. I hate feeling like this and not being able to stop it.

I’m jumping at everything, something falling, loud noises, something moving near me unexpectedly. I feel stressed at the slightest of things, a mess, something I’ve forgotten, feeling lazy when I’m in so much pain I neglect the few things I need to get done around the flat. The worst part is knowing it is all so irrational. I get so frustrated with myself for it which just makes things even worse and I just can’t brain some days!

Do you struggle to brain some days too? How to you manage it?

 

I can't brain today

 

 

 

#WorldMentalHealthDay

#WorldMentalHealthDay

 

Today is of course #WorldMentalHealthDay. I wanted to join in and share a few things with you all to help raise awareness and help those struggling to see that they are not alone, such a huge percentage of the population struggle & feel so, so alone & that really needs to change. We need to reach out to one another & share our stories!

Mental Health is something I heard a lot about as a child as a lot of the adults I grew up knowing had depression, anxiety, bipolar & schizophrenia, so it is something I’ve learnt a fair bit about different issues over the years. I was going to look into statistics and figures but honestly I don’t feel there is any need, so many of us don’t say a word which leads me to believe the statistic’s are unrealistic.

I myself struggle with depression & anxiety and for quite some time I struggled massively with ED’s which I’ve slowly discovered has contributed to my Chronic pain which of course has caused me to feel quite depressed, I also struggle with how my Scoliosis makes my ribs stick out but sharing my stories in my blog has meant I’ve had a lot of support and encouragement from other people and that has made such a difference!

I talk openly on my blog about all these things, NOT for sympathy but to connect with other’s who feel the same, it can be very lonely and stressful when you feel worthless & too scared to ask for a little help and I truly hope that the blogging community sharing their stories helps anyone struggling.

My brother has Aspergers & PTSD amongst other things & yes he can be difficult to be around at times but that ISN’T his fault. He had very little support growing up and felt very alone, being pushed from one foster home or care home to another as a child and being sectioned as a teen and then suddenly being all alone in a tiny bedsit has been very stressful and hard for him.

He spiralled out of control turning to alcohol and drugs to numb the pain, he was EXTREMELY difficult to be around during that time BUT the Mr and I made it our mission to help him turn himself round. And you know what? With a bit of persistence, love and a little bit of a kick up the bum he has become a totally different person over the past year.

Now he is dealing with his issues and facing them in counselling he is coping much better. Knowing he IS part of our family & our home is his home has helped him relax and realise he is loved and cared for. He still has bad days especially because of his past but now instead of trying to numb the pain & destroy himself he picks up the phone and calls me or jumps on a train and distracts himself or talks his problems through and bit by bit he has turned his life round completely.

Talking about our problems can help us more than most things especially if we feel someone is actually listening, we know people may not fully understand but it’s nice to be heard and it makes us feel less alone.

What’s your story? What are you struggling with? What do you do to cope?

Image result for you are cared for

If you need to talk please do, my DM, email etc is always open to ANYONE that needs to talk, day or night! If you prefer there are plenty of charities to help, whether its over the phone, by email or on-line chat, whatever method you prefer there is ALWAYS someone waiting to help you and talk through your problems, PLEASE DON’T SUFFER IN SILENCE!

If you do need to talk to someone here is a small list of contacts:

The Samaritans are a well known organisation who are always there for a chat whether your just having a low day or you feel thing’s are much worse, get in touch!

Whatever you’re going through, call us free any time, from any phone on 116 123.

We’re here round the clock, 24 hours a day, 365 days a year. If you need a response immediately, it’s best to call us on the phone. This number is FREE to call. You don’t have to be suicidal to call us.

Another brilliant organisation is Togetheruk.org although I have no personal experience myself they offer a range of services around the country .

Together is a national   charity working alongside people with mental health issues on their journey towards independent and fulfilling lives.

MIND is an amazing organisation that offers counselling & they have helped both my and my brother. My brother still currently has counselling with them and I can honestly say that has played a HUGE part in his recovery. They offer a range of services and support too.

Contact us

Our lines are open 9am to 6pm, Monday to Friday (except for bank holidays).

0300 123 3393

info@mind.org.uk
Text: 86463

Even if you find ways to cope and manage and feel you have recovered well there may still be days you need a little chat to help you keep on top, please do ask for help if you feel thing’s are slipping again.

If you know someone struggling, make them a cuppa & share some cake & just be there to listen when you know they are feeling low. Sometimes just being there can mean so much, we don’t need to be told what to do or to just cope we just need a little love & understanding to help us through the bad days so we can fully enjoy the good days.

Staying On Top

I’ve shared quite a bit on this blog over the last year and I have to say it’s definitely helped, even when I went through a quiet patch the blog was still here being read and liked & commented on and I’ve started to get back into the swing of things again.

Staying on top

I’ve met some lovely bloggers & I’ve noticed myself interacting more and over the last few weeks that has given me a bit of a boost to be honest. Now I’m full of idea’s again and being a lot more organized jotting down notes and dates so I don’t keep forgetting and feeling empty and useless.

On top of all that reading what other’s have gone through or are going through has really been a big motivation for me on bad day’s, if they can carry on & find ways around their challenges I can too!

Sometimes it makes it easier to push through and get things done and sometimes it reminds you to take that much needed break. All in all I think it’s helped me restore some kind of balance and I feel like I’m staying on top of everything again not just the blog.

During my quiet patch I spent a lot of time thinking I was completely useless. My brother especially has helped me see that although I am limited by what I can do, it doesn’t make me lazy, he reminded me of our ‘mother’ growing up and how much more I do for my girls in comparison.

I spend a lot of time pointing out what I can’t do and all the things going wrong but I’m trying to focus on what I can do and what’s going well instead. Instead of feeling awful for taking a break I use that time to blog or chat or crochet so I’m still doing something rather than feeling sorry for myself.

I know there are still going to be days where it is all too much but hopefully with a bit more positivity those days will become fewer.

I’ve started writing notes in notebooks, on post it’s and on our little whiteboard on the fridge to help me remember things & it is definitely helping me be a bit more organized. Perhaps if I finally start using my planner and calander a little better too I’ll spend less time frustrated & forgetting things & getting more done aswell as actually resting when I need to.

Hopefully I can stay on top of things and keep positive for a while! How do you stay on top? What help’s you stay positive?

Adulting

Sometimes I find adulting really hard, the simplest of things become the biggest of challenges especially if it’s something I’m doing for myself. One of those thing’s is booking appointment’s & where it’s difficult to even get through to my Dr’s Surgery  on the phone it makes the whole thing a lot more stressful but I finally managed to get through today (After 22 attempts!) and was booked in for 4.40pm. Normally after around the 10th attempt I give up but I’m so fed up with struggling I just want to gain control of my life again so I kept going until I finally got through.

Adulting

Of course I didn’t get seen until 5pm whilst sat in a deserted waiting room (!?) but when I did I admitted how much I have been struggling with my anxiety and depression the last few months and had missed my prescriptions. Luckily the Dr was really understanding even though i had never met him before. We decided to up my dose of Duloxetine from 90mg to 120mg in the hope it calms my anxiety a bit more aswell as helping with the pain until my pain clinic appointment next month.

After my appointment I realised I had been stressing and panicking for almost 2 months about getting an appointment & losing my prescription and then after a few weeks went by, what the Dr would think of me for A) losing my repeat prescription, B) leaving it so long & C) Struggling so much to do such basic things. I guess it’s silly really as Dr’s aren’t there to judge (although some do and have!). I guess not seeing one Dr regularly makes it difficult too as I never know who I’m going to see!

social-anxiety-disorder-5-728
I found this on google images and it explains how I feel so well!

Hopefully now I have a repeat prescription again things will begin to feel a little easier again and I’m going to try my best not to slip up again!

 

A huge sigh of relief

I can finally breath a huge sigh of relief! The last few weeks have been so damn stressful it’s unreal! I’ve been stressing about my ESA assessment decision almost constantly, we had to make such a tough decision and re home the cat’s knowing whatever the outcome we just can’t afford the extra cost’s any more, we’ve had several problems with the refit the council are doing and 2 kids at home with it all going on this half term (which of course has been miserable!) has just been utter chaos!

Getting a call yesterday morning from a number I didn’t know freaked me out and I almost rejected but I am so glad I didn’t!

It turned out to be the person finalising my ESA decision which initially made me panic even more as I was convinced I would be refused but I spoke to such a lovely lady and after a chat and adding on a little more information about the side affects I’m having from my medication she made the decision to award me ESA for the next year!

Honestly I was gob smacked I’ve heard so many depressing stories and anything that involves the job centre has always gone badly for us so to finally be taken seriously and have all that stress lifted had me almost in tears with relief as I thanked the lady on the phone.

When she explained I had originally only been given 6 points based on my anxiety and I would have been refused as I needed 15 to pass I nearly passed out but after explaining the nasty side affects of my medication to her and how things have worsened in general she had decided to award me full points!

My assessment was based on my chronic pain which without the medication side affects they see me as fit for work. My depression was basically ignored because I told them that although I have attempted suicide a few times in the past, knowing I have a family now I wouldn’t be able to bring myself to attempt it again knowing the emotional and financial impact it would have on them. My anxiety was at least considered severe enough to be awarded some points but looking at the overall picture it’s horrible to think how many people in a similar or even a worse situation would be refused and deemed fit for work!

I know I am extremely lucky to be given this break and I appreciate it so much being able to just focus on my health and my family for the next year and I’m hoping in this year I learn to manage everything better so one of us can go back to work and we can start saving and getting somewhere at last!

An Exhausting Week

It’s really been an exhausting week as I was due my ESA assessment on Tuesday afternoon and had spent the past week or so beforehand feeling gutted that I was going to miss out on the little time we had to spend with Eva on her birthday around schopl but on Monday I got a call asking me to move my appointment time from 2.45pm to 10am. Part of me was so glad it meant I could surprise Eva and collect her from school, hand out sweets to her classmates & take her to spend her birthday money in town but the change of times also threw me and made me panic so I spent most of Monday night waking and was up by 5.30am panicking and feeling sick & nervous.

On the plus side I had plenty of time to get Eva’s cards, badge & balloon ready before she woke up & was the first one to wish her a happy birthday!

an exhausting week & Eva's birthday

I managed to keep calm until the Mr took Eva to school & then I begun panicking more about the assessment and started feeling really sick.

I hate talking to strangers but the woman that did my assessment wasn’t too hard to talk to at least but every pause made me even more nervous and several times I felt so hot and dizzy I thought I might pass out. I had a friend in with me but I spent most of the time staring out the window.

I dont really remember exactly what was said now as I was mainly trying to focus on breathing and answering each question without stumbling over my words but I remember going through my daily routine which was quite depressing to hear out loud.

We moved on to my depression and anxiety when my previous self harming came up which I stupidly didn’t expect and it threw me especially as I had to explain it fully aswell as my failed overdose at 18. By this point I suddenly realised I was running my thumb nail across my left palm hard enough to leave my hand bright red underneath the desk.

I dont remember much that was said again after that but I remember doing the physical tests before being told to expect to hear something within 2 weeks and leaving. I couldn’t wait to get out and panicked as I felt so hot & sick after doing the physical and was shaking by the time I got out into the fresh air.

I thought I’d feel relieved afterwards but instead I felt even worse. Talking about my past, how much I’m struggling mentally and physically every day, explaining my boring depressive life messed with my head a bit. Its been a few days now & I feel a little better at least but I am still worried about the outcome and what could happen next.

My anxiety in general has been through the roof lately and I’ve been struggling to focus on anything for the past few weeks where we have had so much go on and I just can not shut my head up long enough to do anything so I’m hoping now things are calming down again and we have less appointments to deal with for a few weeks I can get back on track and relax a bit more.

Starting next wednesday we have workers in and out doing our kitchen, toilet & bathroom which is making me panic a bit but I am hoping that as I’m pretty much stuck indoors with little to do whilst they do the work I will have a bit of extra time to focus on the blog & crochet and hopefully stress a little less!

ESA Assessment

On the 22nd I have my ESA assessment and I have to say it’s really making me nervous. It’s so hard trying to explain to people how much I struggle on a daily basis with both my pain and mental health and I’m terrified as if I’m refused I just don’t know how we are going to cope. I tried to write on a ‘support’ group how I am feeling and was surprised to find so many people making horrible comments towards me, I know there are people a lot worse off than myself and I can appreciate it is so much harder for them but to me this is difficult too and I need to ramble about it somewhere safely… I guess this is kinda what the blog is for after all!

I didn’t expect to get as far as actually going through with the assessment, I guess part of me hoped the steroid injections would have helped ease enough pain for me to start getting back on track and start looking for a part time job but after a good week everything has just gone back downhill and I’m back to where I was before the injections so I have no choice but to go through with the assessment and hope for the best but my anxiety is getting the better of me and feels like it’s eating me up.

How do you even begin to explain to a total stranger that although you look fine on the outside apart from walking a little funny that every step requires so much effort that even a 5 minute walk leaves you exhausted physically and mentally at the age of 25?

I know being completely honest is necessary but it’s also scary to think I’m going to have to admit to a stranger that I can’t pick up my baby at just 20 month’s old, if I take her out on my own I have to get the Mr to put her in her stroller as I can’t even do that without causing more pain, I cant even lift her onto a changing table so have to lay her stroller flat if I’m alone! How do you admit that you can’t even manage walking your 5 year old the 10-15 minute walk to school and back every day and have to rely on the Mr to do it otherwise I’m left in so much pain and feel so drained that I’m left completely useless for the rest of the day?

I guess a big part of it is me feeling like I am admitting I am a failure as a mother, I cant lift and rock my baby when she needs it, I cant walk my daughter to and from school and get chatting with the other mums, I cant take the girls to the park regularly, I cant bend down and pick up their toys properly, hell I cant even wash their damn clothes because the bending, lifting, and stretching to hang the clothes sends my back into spasm!

How do you admit all this to a stranger face to face? How do you explain that your basically useless and break down several times a day just trying to do the most basic of things? How do you explain that simple tasks make you feel so queasy because of the pain & a sharp bolt can make you vomit & leave you feeling so shaky and weak without sounding like a drama queen?

I’m also terrified my emotions will get the better of me on the day, I’m an emotional wreck most day’s as it is and if I get too worked up I get queasy and struggle to breath without throwing up! Any time I try to explain to someone what I’m going through it makes me feel like crap reeling off a list of basic tasks I struggle to do, how every time I struggle I become so upset and angry with myself for not being able to do such a ‘simple’ task etc. It all just sounds like I’m over reacting!

I guess I’ve tried to hide the pain and how it leaves me feeling from people for so long that now I need to open up and be honest so I can get the help I need it’s much harder and it feels like I’m about to go to confession to admit all my failures instead of sins.

It’s terrifying to think they could decide to deem me fit to work when I can’t even load the dishwasher daily, climb into the bath, push a hoover around and all the other thing’s most people do without thinking. The worst part is if they do say I am fit to work I have no choice but to try and find a job as there’s no way I could cope trying to keep on top of school runs, looking after Izzy etc so I need the Mr to be at home to carry on doing it all as I can’t.

Then there’s the added fear of how my health will affect a job as just 5 weeks doing 4 hours a day work experience at the job centre was draining and one of the day’s I had to be sent home as I was in so much pain & everything felt too much and I arrived in tears! I tried so hard for the first week or two to hide it but eventually the staff I worked closely with were picking up on it and I was made to go sit at a desk several times. One of those times I was struggling so much I buried my head in my arms on the desk to hide the tears whilst I tried to stretch my back out that one of the managers walked past and thought I was being lazy and told me to sit up which of course led to me feeling even worse and having to excuse myself to go hide in the toilet for 5 minutes to calm down.

I’d love to work, I’d love the chance to socialise with other’s and actually make some friends around here and do something to be proud of and show the girls the importance of working but I know realistically I just wouldn’t cope,I cant even keep on top of the blog on bad days because I just can’t even focus! It’s fairly easy to get this all down in words but how on earth am I meant to explain all this to a complete stranger and have them take me seriously? So many questions and I know on the day I’ll only feel worse and again afterwards waiting on their decision. I guess time will tell but I needed to get it all off my chest instead of letting it carry on eating me up!